XP Teen Comic 2017

Teddington Trust have teamed up with Dekko Comics to create a special one-off series of three comic book stories created by, and for YOU, our XP pre-teen and teenage patients.

Here is your chance to be involved!1. 
If you are aged 8-18 years old and have XP or are a sibling of a patient with XP you can have your say and help us create this comic series. The three comics will be cover the following overall themes:

1. What would you like your friends, family, and others to know about you and living with XP?
2. What information would you (as a patient or sibling) like anwers to, when thinking about living with a rare disease/XP?
​3. What would help you? (technology, aids, peoples views anything)

Please take a few minutes to complete the following boxes with your thoughts and have your say.

    Getting to know you

    Creating our comic!

    Your chance to tell everyone what you want them to know about being you!

    How can we help you better understand your condition?

    What would help you?

    Character ideas!

    Keeping in touch

    We are holding a workshop in the UK for patients aged 8-18 years on 25th February 2017. If you live in the UK would you like further details about how you can get involved?
    Overseas children can take part if they are available to link in by skype on 25th Febryary 2016 at 10.30am (UK time)
    We would like to create a task force to be involved in the ongoing development of this project and help with reviewing the draft works. If you are keen to be involved and help us with this project throughout 2017 please let us know.
    If you have requested more information or ongoing engagement please provide us with the following information.
    Thank you most sincerely for your time in completing this survey.
    ​
    This is a very exciting project and we are so thrilled to have your views. If you would like to send us any sketches of character ideas or other comments you can email these to us directly to nmiller@teddingtontrust.com

    Thank you from Teddington Trust and Dekko Comics!

    If you would like a copy of our data protection policy this is available upon request by contacting nmiller@teddingtontrust.com